Aparna's Story: Redefining Possibilities for Patients with Rare Diseases

Aparna had only been working as a clinical programmer on Bristol-Myers Squibb’s Global Biometrics Sciences team for six months when five-year-old Tayjus was diagnosed with Duchenne Muscular Dystrophy (DMD). Universal support from managers, co-workers, friends and family has helped her redefine what can be achieved by focusing on one day, and one goal, at a time. Now, 14 years later, Aparna and Tayjus are supporting Bristol-Myers Squibb’s advocacy and clinical development teams—helping them understand the challenges of dealing with rare childhood diseases so they can design more accommodating clinical trials with better access for patients and caregivers. 

LINKS TO RELATED RESOURCES: https://www.workingtogetherforpatients.com/; https://www.youtube.com/channel/UCjFf4oKibYrHae2NZ_GPS6g

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